Well, today was Jim's 2nd ALS Clinic appointment. For those not familiar - it is a "round robin" visit where patients rotate through PT, OT, Speech Therapist, Nutritionist, social worker and neurologist.
All in all it was a very good day. Jim was having a good day both physically and mentally. He has some increased stiffness (which is obvious) which is from the muscles shortening. He has been shown more stretches to do - trick is to get him to do them!! He was also given some stretching exercises for his wrists. His grip was actually a lot stronger then it was in January (probably due to good day & meds helping the muscle spasms.)
His breathing is still good and weight is stable - the "thinness" we are seeing in his legs, chest and legs is most likely muscle atrophy. (Again something we pretty much guessed.)
I wasn't overly impressed with the neurologist - don't get me wrong he was nice and all - but like the other 2 better. He does think we should pursue the consult with the FTD specialist (scheduled for August.)
After getting out of the appointments early I asked Jim what he would like to do - he wanted to see Eclipse. So yes I have seen it 2x on opening day!! (nerd) Jim also applied for his golden buckeye card (lol).
I offically feel old 4+ hours in the clinic, lunch with our 2 for 1 coupon, matinee movie and a buckeye card. Now we just need to be in bed before dark.
**** I REALLY have to thank my cousin Gretchen for watching our girls!!! It was so nice to not have to worry about them and know they're having lots of fun!!!*****
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