Well another long day at ALS Clinic is behind us and all in all it went well.
Jim's breathing and strength are pretty much the same as is his range of motion. The only real place he lost was some in his left ankle. Of course, his muscles are stiffer - but we knew that. He was down another 6 1/2 pounds - so has lost about 14 pounds since the beginning of the year. Once again we were told to increase his calories and fat intake. Problem is - you know Jim - he has never really limited these things to begin with. He eats what he wants when he wants. My concern is not so much his eating - it is teaching the girls that yes daddy can eat like this but it is not good for the rest of us!
Jim has been having some minor choking issues lately so the doctor ordered a barium swallow test - no date set yet. The doctor is not overly concerned but being cautious and wants to set a "baseline" with this test.
After a long day Jim and I enjoyed a child-free lunch and got to do all kinds of fun stuff like get an oil change and renew the tags for the van. (Though he no longer has a license the van is still in his name.) Then we had to reclaim the kids (who did not want to leave the sitters!)
Jim got to go home and nap while the girls and I went Bday shopping for daddy. Suprise suprise - they picked out another Christmas ornament! (The Hallmark ornaments always come out around his birthday.) I swear that tree is going to fall over from the weight of ornaments.
Tomorrow we leave for a much anticipated vacation to Idlewild Park (in Ligioner PA). Mom is joining us!! Can't wait. Friday Jim's Aunt Jean, Uncle Dave and cousins Darcy (and family), Scott and Megan are meeting us! SO EXCITED! Just a little nervous about Jim and the heat wave. He is having some trouble with body temperature (mostly he is always colder then the rest of us and has some abnormal sweat issues). But we plan to take it slow with no set itinerary.
HOPE EVERYONE IS HAVING A SAFE AND HAPPY SUMMER!
