Okay - it has been a long while since I updated on anything on here - so here is the year in review! I put the corny Christmas letter here for a reason - read if you want - or skip to the next section... (the purple writing!)
December 2014
Dear Friends and Family -
Well I don’t know about anyone else but I’m kinda glad 2014 is
winding up!! It has been a lack-luster
but very busy year in the Metz household.
I will start with Jim’s busy, busy year! Jim continues his collection of “-ologists.”
I seriously have lost count how many we have seen over the last five years. In August we met a new neurologist – he
specializes in “dementia-extrapyramidal syndrome
conditions.” No, I don’t understand what
that means either. Basically – Jim still
doesn’t fit in to any condition completely.
According to this new doctor all these diseases affect the same parts of
the brain and fall under the “ALS umbrella.”
Over the past year he has developed more and more Parkinson’s-like symptoms
which lead them to think he may have Lewy Body Dementia, (the same dementia
that Casey Kasam had and they believe Robin Williams was developing,) however
he still exhibits symptoms of Frontal Temporal Dementia. I think he will always be somewhat of a
medical mystery.
In April Jim
came down with a stomach bug and decided to add some excitement to Mikayla’s
first sleep-over. We awoke that morning
to find him on the floor. He lost all
strength and power, was hospitalized for three days and spent almost three
weeks in a nursing home for rehab. He
was discharged right before Easter.
Though we saw a short-term improvement after that stay all in all Jim
has been on a steady decline. He is
having more frequent falls, movement and memory issues. It is getting harder and harder for him to
get out and about.
Jim’s year was
not all dismal – On July 9th he threw out the first pitch at the
Indians vs. Yankees game!! Thanks to the
support of many friends and family, Team Shaggy sold the most tickets to the
ALS Awareness game with the Tribe! We
got to go to team batting practice and watched the game from box-seats right
behind third base. It would be a perfect
story if the 14 inning game had been a victory!
Speaking of
Team Shaggy – I am sure everyone has seen the Ice Bucket Challenge! How much fun was that??!!?? Team Shaggy raised the most we have ever
raised thanks to that challenge!! We
even received a very generous donation from strangers in Switzerland due to the
power of social media! If you have not
seen our IBC video check it out on my Facebook page!
Okay – now on
to the rest of us! Mikayla is in fifth
grade and having an awesome year! She is
still in science club. Her attitude has
completely changed from last year and she is just excelling. She started math tutoring this year and it
has boosted her confidence by leaps and bounds.
Ruthie is in
the second grade and has her Kindergarten teacher again this year. She is doing great in school also. She just celebrated her First Reconciliation and
is preparing for her First Communion in May. Both girls are active in walking
club and Girl Scouts – and cookie sales are soon to be underway!!Mikayla and Ruthie kept us busy this summer with swimming lessons and softball. Between the rainstorms and tornadoes we actually fit a few games in. We were at the ball field four to five days a week! I was sad to see it end – it was great social time for all of us.
As for me I am
still enjoying my weekends at work. I am
strictly weekends right now since Jim and the girls cannot be left alone at
night. Mom and Dad still get the entire
family (dogs too) every weekend. My
mother the Saint keeps everything running while I’m gone.
My new favorite
hobby is sewing – I have been putting Grandma Metz’s sewing machine to
work! I made the girls’ Halloween
costumes and bags and currently have several Christmas projects in the works –
including an “Anna” costume for Mikayla to wear to Frozen on Ice.
The girls are
keeping my days off busy too – I volunteer at the school every week, am active
in PTG and Girl Scouts too. I have also
been co-teaching Ruthie’s second grade religion class. Let me just say – good thing that I didn’t
pick teaching as my career! It is fun
though and the kids are always good for a laugh! My favorite part of this year was doing a
church tour with the class – We were pointing out the statue of Mary and
explaining it when one little boy piped up “Isn’t that the lady who appears in
the mirror??” I started to answer that
one then decided not to open that can of worms!!
On that note –
I have school parties, PSR teaching plans, Girl Scout activities and piles of
fabric waiting on me so I will end it here. Here I thought this would be a short update –
guess NOT!
Hope you have a
very Merry Christmas and a blessed New Year.
Lots of Love,
Shelley &
Gang